Today I write with complete sadness as I update Aria. She has been doing well, however her parents met with the DNA specialist to confirm indeed she has a rare DNA disorder. She is one of 650 cases that has CCHS. If you want to click on the link it explains her breathing problems. Unfortunately this is a life-long battle. I wanted to write quickly this morning about it so that you are encouraged to pray for them. Think of it this way, if you were in their position, wouldnt you feel even a little bit better knowing that people are praying for you? As a parent, this would devestate me.
Another sad but good thing is the Rescue Center in Haiti (link to the side, new kids in the RC) has gotten a few more kids this week. Marlene, age 5 weighs 14 pounds. Can you even believe it? Rejoice that someone is now taking care of them, but it doesnt mean their bodies will not reject the food they are given. Pray that they can get the nourishment they need.
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